This section of Web content was
last updated on June 21, 2010.
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Federal and National Resources
Access
to services involves:
- Physician/other professional or self referral;
- The ability to get to the centers, programs or offices that provide services; and,
- The ability to pay for the services by one or more methods.
The majority of people with brain-injuries enter the care system via emergency medical services or the emergency/trauma department; these assured services are often not paid by people without insurance or with limited resources.
Referral and coordination of brain injury services has improved with increased awareness, information, and improvements to the brain injury services system.
INFORMATION and SUPPORT RESOURCES:
- Brain Injury Association of America (BIA)
website: http://www.biausa.org/
The BIA's mission is to provide information and resources to the survivor of brain injury and to educate in ways of prevention. From its home page, you can locate your local chapter and the support groups that serve your area. - Brain Injury Association of Michigan
website: http://www.biami.org/
Founded by family members, persons with brain injury, and persons in the brain injury field, it was incorporated in Michigan in 1981 and was one of the first state associations chartered by the National Brain Injury Association. The BIA of Michigan has affiliated groups that include the Michigan Brain Injury Providers Council and local support groups throughout Michigan. - National Resource Center on Traumatic Brain Injury
website: http://www.neuro.pmr.vcu.edu/
Practical information for professionals, persons with brain injury, and their families. From Virginia Commonwealth University's Medical College of Virginia. - International Brain Injury Association (IBIA)
website: http://www.internationalbrain.org/
The International Brain Injury Association was founded in 1993. The IBIA encourages collaboration and the sharing of information related to all aspects of brain injury, from prevention to long-term care issues. The site offers brain injury facts, news, conference and program information, and more. - Dana Brain Center
website: http://www.dana.org/
General information about the brain and current brain research, and to link to validated sites related to more than 23 brain disorders. "Brainy Kids Online" offers children, parents and teachers a site with activities for younger children, puzzles, links to excellent educational resources, and lesson plan suggestions. - Waiting While Someone is in a Coma
website: http://www.waiting.com/
Offering information about coma, the Rancho Los Amigos Scale, neurosurgery, brain anatomy, brain functions and a complete glossary of terms you may encounter. It answers frequently asked questions, discusses advocacy, financial, legal issues, discharge and rehabilitation. - Housing and Mortgages for People
with Disabilities
website: http://www.mortgageloan.com/disabilities/
MortgageLoan.com offers information on the advantages and disadvantages of home ownership, including general information on the homebuying process, financial assistance and more.
PREVENTION
- Think First Foundation
website: http://www.thinkfirst.org/home.asp
The mission of the Think First Foundation is to prevent brain, spinal cord and other traumatic injuries through the education of individuals, community leaders and the creators of public policy. - The National Safe Kids
Campaign
website: http://www.safekids.org/
The mission of the National Safe Kids Campaign is to prevent the number one killer of children - unintentional injury. By working at a national level through grassroots Safe Kids Worldwide educates adults and children, provides safety devices to families in need, and passes and strengthens laws to empower families and communities to protect children ages 14 and under.
ONLINE CHAT
- Brain Injury Chat Room & Homepage
website: http://www.braininjurychat.org/
Offers peer support for people who have survived brain injuries. Provides links, chatrooms and general information for those living with brain injury. - The
TBI Chat Room & Homepage
website: http://www.tbichat.org/
Features homepages of Traumatic Brain Injury (TBI) survivors, and e-mail support lists for survivors and families. The page also serves as a chat room where survivors, families and caregivers can come together and share information and support online.
GENERAL HEALTH
- Neuroscience on the Internet
website: http://www.neuroguide.com/
A searchable and browsable index of neuroscience resources available on the Internet: neurobiology, neurology, neurosurgery, psychiatry, psychology, cognitive science sites and information on human neurological diseases. - U.S.
Department of Health & Human Services - HealthFinder
website: http://www.healthfinder.gov/
A large government resource website for health information sponsored by the U.S. Department of Health and Human Services.
FEDERAL GOVERNMENT AGENCIES
- Centers for Medicare & Medicaid Services
website: http://www.cms.hhs.gov/default.asp
A federal agency within the U.S. Department of Health and Human Services that administers the Medicare, Medicaid and State Children's Health Insurance Programs. - Social Security Administration
website: http://www.ssa.gov/
A Web site of the Social Security Administration. Information about benefits, earnings, regulations, retirement and taxes. - National Institute of Neurological
Disorders and Stroke
website: http://www.ninds.nih.gov/
The nation's leading supporter of biomedical research on disorders of the brain and nervous system. - U.S. Department of Veterans Affairs
810 Vermont Avenue, NW
Washington, DC 20420
website: www.va.gov
Phone: 800-827-1000
TTY: 800-829-4833
ADVOCACY AND LEGISLATION
- Federal legislation tracking
website: http://thomas.loc.gov/
Contact your member of Congress. Daily updates and full text bills available. - The
White House
website: http://www.whitehouse.gov/ - NPND.org
website: http://www.npnd.org/
Provides a presence and national voice for parents of children, youth and adults with disabilities, NPND shares information and resources in order to promote and support the power of parents to influence and affect policy issues concerning the needs of people with disabilities and their families.
ACCREDITATION AND STANDARDS
- CARF
website: http://www.carf.org/
An internationally-recognized accreditation authority for organizations serving people with disabilities and others in need of rehabilitation. - CMSA
website: http://www.cmsa.org/
A not-for-profit society of case management and allied health care professionals furthering the development of new, higher levels of industry expertise.
The
following links provide information and resources on TBI
within the State of California:
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