This section of Web content was last updated on June 21, 2010.

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Federal and National Resources

Federal TBI ResourcesAccess to services involves:

  • Physician/other professional or self referral;
  • The ability to get to the centers, programs or offices that provide services; and,
  • The ability to pay for the services by one or more methods.

The majority of people with brain-injuries enter the care system via emergency medical services or the emergency/trauma department; these assured services are often not paid by people without insurance or with limited resources.

Referral and coordination of brain injury services has improved with increased awareness, information, and improvements to the brain injury services system.

 

INFORMATION and SUPPORT RESOURCES:

  • Brain Injury Association of America (BIA)
    website: http://www.biausa.org/
    The BIA's mission is to provide information and resources to the survivor of brain injury and to educate in ways of prevention. From its home page, you can locate your local chapter and the support groups that serve your area.
  • Brain Injury Association of Michigan
    website: http://www.biami.org/
    Founded by family members, persons with brain injury, and persons in the brain injury field, it was incorporated in Michigan in 1981 and was one of the first state associations chartered by the National Brain Injury Association. The BIA of Michigan has affiliated groups that include the Michigan Brain Injury Providers Council and local support groups throughout Michigan.
  • National Resource Center on Traumatic Brain Injury
    website:
    http://www.neuro.pmr.vcu.edu/
    Practical information for professionals, persons with brain injury, and their families. From Virginia Commonwealth University's Medical College of Virginia.
  • International Brain Injury Association (IBIA)
    website: http://www.internationalbrain.org/
    The International Brain Injury Association was founded in 1993. The IBIA encourages collaboration and the sharing of information related to all aspects of brain injury, from prevention to long-term care issues. The site offers brain injury facts, news, conference and program information, and more.
  • Dana Brain Center
    website: http://www.dana.org/
    General information about the brain and current brain research, and to link to validated sites related to more than 23 brain disorders. "Brainy Kids Online" offers children, parents and teachers a site with activities for younger children, puzzles, links to excellent educational resources, and lesson plan suggestions.
  • Waiting While Someone is in a Coma
    website: http://www.waiting.com/
    Offering information about coma, the Rancho Los Amigos Scale, neurosurgery, brain anatomy, brain functions and a complete glossary of terms you may encounter. It answers frequently asked questions, discusses advocacy, financial, legal issues, discharge and rehabilitation.
  • Housing and Mortgages for People with Disabilities
    website: http://www.mortgageloan.com/disabilities/
    MortgageLoan.com offers information on the advantages and disadvantages of home ownership, including general information on the homebuying process, financial assistance and more.

PREVENTION

  • Think First Foundation
    website: http://www.thinkfirst.org/home.asp
    The mission of the Think First Foundation is to prevent brain, spinal cord and other traumatic injuries through the education of individuals, community leaders and the creators of public policy.
  • The National Safe Kids Campaign
    website: http://www.safekids.org/
    The mission of the National Safe Kids Campaign is to prevent the number one killer of children - unintentional injury. By working at a national level through grassroots Safe Kids Worldwide educates adults and children, provides safety devices to families in need, and passes and strengthens laws to empower families and communities to protect children ages 14 and under.

ONLINE CHAT

  • Brain Injury Chat Room & Homepage
    website: http://www.braininjurychat.org/
    Offers peer support for people who have survived brain injuries. Provides links, chatrooms and general information for those living with brain injury.
  • The TBI Chat Room & Homepage
    website: http://www.tbichat.org/
    Features homepages of Traumatic Brain Injury (TBI) survivors, and e-mail support lists for survivors and families. The page also serves as a chat room where survivors, families and caregivers can come together and share information and support online.

GENERAL HEALTH

  • Neuroscience on the Internet
    website: http://www.neuroguide.com/
    A searchable and browsable index of neuroscience resources available on the Internet: neurobiology, neurology, neurosurgery, psychiatry, psychology, cognitive science sites and information on human neurological diseases.
  • U.S. Department of Health & Human Services - HealthFinder
    website: http://www.healthfinder.gov/
    A large government resource website for health information sponsored by the U.S. Department of Health and Human Services.

FEDERAL GOVERNMENT AGENCIES

  • Centers for Medicare & Medicaid Services
    website: http://www.cms.hhs.gov/default.asp
    A federal agency within the U.S. Department of Health and Human Services that administers the Medicare, Medicaid and State Children's Health Insurance Programs.
  • Social Security Administration
    website: http://www.ssa.gov/
    A Web site of the Social Security Administration. Information about benefits, earnings, regulations, retirement and taxes.
  • National Institute of Neurological Disorders and Stroke
    website: http://www.ninds.nih.gov/
    The nation's leading supporter of biomedical research on disorders of the brain and nervous system.
  • U.S. Department of Veterans Affairs
    810 Vermont Avenue, NW
    Washington, DC 20420
    website: www.va.gov
    Phone: 800-827-1000
    TTY: 800-829-4833

ADVOCACY AND LEGISLATION

  • Federal legislation tracking
    website: http://thomas.loc.gov/
    Contact your member of Congress. Daily updates and full text bills available.
  • The White House
    website: http://www.whitehouse.gov/
  • NPND.org
    website: http://www.npnd.org/
    Provides a presence and national voice for parents of children, youth and adults with disabilities, NPND shares information and resources in order to promote and support the power of parents to influence and affect policy issues concerning the needs of people with disabilities and their families.

ACCREDITATION AND STANDARDS

  • CARF
    website: http://www.carf.org/
    An internationally-recognized accreditation authority for organizations serving people with disabilities and others in need of rehabilitation.
  • CMSA
    website: http://www.cmsa.org/
    A not-for-profit society of case management and allied health care professionals furthering the development of new, higher levels of industry expertise.  
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This section of Web content was last updated on June 24, 2010.

State Resources

State of California TBI ResourcesThe following links provide information and resources on TBI within the State of California:

  • California Department of Mental Health
    1600 9th Street, Rm. 151
    Sacramento, CA 95814
    Phone: 800-896-4042 or 916-654-3890
    TTY: 800-896-2512
    Fax: 916-654-3198
    website: www.dmh.ca.gov/services_and_programs/Adults/TBI.asp
  • California Department of Rehabilitation
    721 Capitol Mall
    Sacramento, CA 95814
    Phone: 916-558-5320
    TTY: 916-558-5322
    website: www.dor.ca.gov
  • California Work Incentives Project’s Disability Benefits 101 website
    website: www.disabilitybenefits101.org/
  • State Independent Living Council
    1600 K Street, Suite 105
    Sacramento, CA 95814
    Phone: 866-866-7452 or 916-445-0142
    TTY: 866-745-2889
    Fax: 916-445-5973
    website: www.calsilc.org
  • Veterans Health Administration
    Statewide VHA Listing

 

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This section of Web content was last updated on October 21, 2010.

County Resources

County resources are currently being updated. We apologize for any inconvenience. Please check back later.

 

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This section of Web content was last updated on May 30, 2010.

Local Resources

Local TBI Resources

These organizations provide services to families dealing with Traumatic Brain Injury (TBI) in California:

The Traumatic Brain Injury Services of California
TBI Information Hotline: 888-824-6724
website: www.tbisca.org
The TBI Services of California is a network of seven service providers throughout the state offering a variety of services to survivors of TBI including community reintegration, service coordination, supported living, vocational supportive services, information & referral, and public/professional education.

California Caregiver Resource Centers
Phone: 800-445-8106
website: www.caregiver.org
The 11 California Caregiver Resource Centers serve every county in the state and provide assessment, resources and services to family caregivers of people with brain injuries.

Protection and Advocacy, Inc.
Sacramento, CA
Phone: 916-488-9950 or 800-776-5746
website: www.pai-ca.org
Protection and Advocacy, Inc. provides legal and advocacy services for Californians with disabilities, including TBI.

California Department of Rehabilitation
Sacramento, CA
Phone: 916-558-5320
website: www.dor.ca.gov
The California Department of Rehabilitation provides services to people with disabilities including vocational rehabilitation and an assistive technology loan program. The website also lists all of California’s Independent Living Centers.

The Betty Clooney Foundation for Persons with Brain Injury
Long Beach, CA
Phone: 888-824-6724
website: www.bettyclooneyfoundation.org/
The Betty Clooney Foundation serves as the Brain Injury of America’s California contact.

ABI Foundation
Carlsbad, CA
Phone: 888-412-7246
website: www.abifoundation.org
The California ABI Foundation provides a variety of services including community support groups, cognitive training program referrals, and a referral network. Serves Southern California.

San Diego Brain Injury Foundation
San Diego, CA
Phone: 619-294-6541
website: www.sdbif.org
The San Diego Brain Injury Foundation is an online resource for brain injury survivors, their families and support community. Serves San Diego County.

Acquired Brain Injury Program
Coastline Community College
Costa Mesa, CA
Phone: 714-241-6214
website: www.coastlineabi.com
Coastline's ABI Program is a two-year educational program designed to provide structured cognitive retraining for adults who have sustained a brain injury due to TBI or non-traumatic brain injuries.

SeaStar-School for Neuroeducation
165 North Myrtle Ave.
Tustin, CA  92672
Phone: 714-508-4360 Ext. 204
website: www.seastarbraininjury.org
SeaStar-School for Neuroeducation is a private, nonprofit, nonpublic school which offers services for children and teenagers with TBI.

The Rehabilitation Research Center (RRC) for Traumatic Brain Injury (TBI) and Spinal Cord Injury (SCI)
Santa Clara Valley Medical Center
San Jose, CA
Phone: 408-793-6433
website: www.tbi-sci.org
The RRC is one of the national Traumatic Brain Injury Model Systems and has provided inpatient and outpatient services to brain-injured individuals since 1976.

Traumatic Brain Injury Resource Directory (TBIRD)
website: www.tbi-sci.org/tbird
This online edition of the TBIRD provides information on the entire range of TBI services in the Santa Clara Valley area, and throughout Northern California.

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